Author Archives: Bo Bigelow, father

About Bo Bigelow, father

Five years ago, I quit my law job to stay home with my kids. My daughter Tess has special needs and is almost entirely nonverbal. She just started kindergarten, but functions at the level of a 1.5-year old. Learn more on our website.

We have our USP7 family

For most of our 7-year-old daughter Tess’s life, we’ve been on our own. Her ultra-rare mutation in her USP7 gene has no awareness day, bumper sticker or fun run. Sure, … Full Entry »

Posted in Neurology, Neuroscience, NRI, Patient post Tagged , , , ,

Now there are eight

It’s night and my wife and I are emotionally drained. The Tess webpage is live and it’s getting shared. While happy it’s gone viral, we’re reeling from how much mental … Full Entry »

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Posted in Genetics, Neurology, Neuroscience, NRI, Patient post Tagged , , , , , , ,