Category Archives: Neuroscience

Reagan’s story

Our daughter, Reagan Leigh, was born in March 2007. The first few months of her life were relatively normal. Like all new parents, we were adjusting to sleep deprivation while … Full Entry »

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My journey from a patient to a scientist

I was living the life of luxury – chicken tenders were brought to me on call, buckets of toys were given to me daily and staying up until midnight was … Full Entry »

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Why I am a passionate advocate for research in rare diseases

I am a mom of two young men, aged 18 and 16 years old. I am also the chair of the Research Support Committee of the Phelan-McDermid Syndrome Foundation (PMSF). … Full Entry »

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Preparing to stay at the Texas Children’s Epilepsy Monitoring Unit

Every day many patients and families enter Texas Children’s Hospital from a variety of cultural backgrounds, geographical locations and unique healthcare experiences. To best meet the unique needs of a diverse patient population, … Full Entry »

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Infantile spasms: What parents need to know

“In some cases, silence is dangerous.” – Saint Ambrose This well-known saying no doubt has a powerful meaning and in the case of our son, the most dangerous silence was … Full Entry »

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