Category Archives: Surgery

Why I am a passionate advocate for research in rare diseases

I am a mom of two young men, aged 18 and 16 years old. I am also the chair of the Research Support Committee of the Phelan-McDermid Syndrome Foundation (PMSF). … Full Entry »

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Posted in Awareness, Neuroscience, Neurosurgery, NRI, Surgery Tagged , ,

Matthew’s story

When Matthew was 6 months old and we lived in New Jersey, I noticed he didn’t use his right side very much. He kept his right hand clenched in a fist, never … Full Entry »

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Posted in Neurology, Neuroscience, Neurosurgery, Surgery Tagged , , ,

Liver transplant: Reid’s story

Reid’s pediatrician missed his diagnosis, even though he presented with all of the symptoms. We trusted her opinion as we had been going to her for four years. At his … Full Entry »

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Posted in Liver, Surgery, Transplant Tagged , , ,

In remembrance of Dr. Denton A. Cooley

Dr. Denton A. Cooley passed away last Friday, Nov. 18, 2016, at the age of 96. Dr. Cooley was a legendary surgeon with an immense impact on medicine and surgery. … Full Entry »

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Posted in Community, Heart Tagged , , , ,

Learning more about our Cardiac Developmental Outcomes Program

This blog was originally shared here. School is now in full swing and the change in seasons is just around the corner. The beginning of a new school year is … Full Entry »

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Posted in Developmental Pediatrics, Heart Tagged , ,