Tag Archives: Jan and Dan Duncan Neurological Research Institute

We have our USP7 family

For most of our 7-year-old daughter Tess’s life, we’ve been on our own. Her ultra-rare mutation in her USP7 gene has no awareness day, bumper sticker or fun run. Sure, … Full Entry »

0 Comments
Posted in Neurology, Neuroscience, NRI, Patient post Tagged , , , ,

How fruit flies and modern genomic technology helped to find a diagnosis for my daughter

My daughter, Bristol, is a cute and vivacious 5-year-old girl with sparkling brown eyes and bouncy curls who lights up a room. The first time we met Dr. Hsiao-Tuan Chao, … Full Entry »

0 Comments
Posted in Genetics, Neuroscience, News, NRI Tagged , , ,

Our long journey to a SON diagnosis

She feels invincible with her floaties on. I smiled as I thought of my beautiful 7 year-old daughter, Kylie, who enjoys swimming and started public school this fall. I am filled … Full Entry »

0 Comments
Posted in Neonatology, Neuroscience, NRI, Patient post Tagged , , , , ,

Video: A Closer Look At Texas Children’s Jan and Dan Duncan Neurological Research Institute

When the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital (NRI) opened their doors in 2010, we made it our mission to understand all neurological disorders and … Full Entry »

0 Comments
Posted in Neurology, Neuroscience, Neurosurgery, Videos Tagged , , , , , ,

By The Numbers: Texas Children’s Neuroscience Center

Texas Children’s Neuroscience Center provides a complete continuum of care for neurologic and neurodevelopmental disorders in children. Our Neuroscience Center has 13 specialty clinics and programs in order to combine … Full Entry »

1 Comment
Posted in By the numbers, Infographic, Neurology, Neuroscience, Neurosurgery Tagged , , , , , , , , , ,