About This Blog
Texas Children's Blog provides important perspective on pediatric health from the same voices that care for our patients at Texas Children's Hospital.
Our Blog In Your Inbox
Tag Archives: nri
For most of our 7-year-old daughter Tess’s life, we’ve been on our own. Her ultra-rare mutation in her USP7 gene has no awareness day, bumper sticker or fun run. Sure, … Full Entry
Our daughter, Reagan Leigh, was born in March 2007. The first few months of her life were relatively normal. Like all new parents, we were adjusting to sleep deprivation while … Full Entry
I was living the life of luxury – chicken tenders were brought to me on call, buckets of toys were given to me daily and staying up until midnight was … Full Entry
I am a mom of two young men, aged 18 and 16 years old. I am also the chair of the Research Support Committee of the Phelan-McDermid Syndrome Foundation (PMSF). … Full Entry