Sharing Noah’s story

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When Craig and I had our baby boy, Noah, we were elated. However, by the time he was 10 weeks old we started to notice he was not acting normally. We learned he was experiencing infantile spasms, a form of seizures. Full Entry »

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Tuberous sclerosis 101

2K12-0237-PVK_8259 Laser Ablation Epilepsy Surgery 5-25-2012 - photo by Paul Vincent Kuntz (1)

Tuberous sclerosis, also called tuberous sclerosis complex (TSC), is a rare, multi-system genetic disease that causes tumors to grow in the brain and in other vital organs such as the kidneys, heart, eyes, lungs and skin. It usually affects the central nervous system and results in a combination of symptoms including seizures, developmental delay, behavioral problems, autism, skin abnormalities, and kidney disease.

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What to ask your doctor when your child is in the pediatric ICU

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The very thought of your child requiring intensive care is terrifying. So if your son or daughter is ever admitted to the pediatric intensive care unit (PICU), your overwhelming emotions and abundant questions are perfectly normal. Here is a quick guide to the PICU: Full Entry »

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Managing allergies at school

With school classes starting soon, some parents of children suffering from asthma and allergies may be more apprehensive about their children’s health rather than learning issues. According to the American Academy of Allergy, Asthma and Immunology, it’s estimated that over 9 million children in the United States have asthma, and about 5-8 percent of children experience food allergies. These lead to more than 10 million missed school days and millions of dollars in medical costs and lost work days for parents. Full Entry »

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Kids Eat Right Month: Taking the “icky” out of picky eating

Providing a balanced and nutritious diet for your child is crucial to their growth and development. However, a common and frustrating barrier for many parents struggling to achieve this goal is their child’s picky eating behaviors, particularly when it comes to vegetables and fruits. Picky eating can turn mealtime into a tense power struggle that is not enjoyable for you or your child. Your child may only want eat certain foods, refuse foods based on their color or texture, or prefer to play at the dinner table rather than eat their food. Here are some creative tips to help tackle your kid’s picky eating habits and promote a happy mealtime environment: Full Entry »

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